Reprinted with permission from Lower Hudson Online.
| Forma, 20, who has cerebral palsy and cannot walk or speak, fiercely concentrated to control his other arm long enough to push a button on the machine he uses to communicate. The topic of the discussion: the refugees in " With his speech device, a personal computer, and a little help from his family and support team at his school, Forma created an informational presentation he gives to raise money for victims in the Darfur region of He has advocated for the cause at his residential rehabilitation school, Cerebral palsy is a chronic condition that affects body movement and muscle coordination, typically caused by damage to one or more specific parts of the brain. In some cases, people with cerebral palsy are unable to coordinate the muscle movement needed for speech. Forma's determination is inspiring, in part because of the physical challenges he must overcome to compose himself. "You can't help but be moved when you see the struggles he goes through to get a thought out," said Like many advocates, Forma put together a PowerPoint presentation he shows on an overhead projector. He moves the slide show forward using his DynaVox device. "He really gets quite a tremendous response," Still, for children and adults with cerebral palsy and other disabilities, access to speech technology and training isn't easy. Many families cannot afford the thousands of dollars to pay for the machines and their maintenance, said "If I don't have sound evidence that the kids need this technology, it is very hard to convince the administration that this is a good thing to invest in," said Obermeyer, who also works as an occupational therapist for the Byram Hills school district. The DynaVox is among the more popular speech devices on the market for people with disabilities, but there are a variety of computers and keyboards available, as well as touch-screen and word-recognition devices. Some of the most advanced technology uses the retina of the eye to move a cursor on a computer screen. All of them help liberate a person with a severe disability from feeling isolated. This liberation often results in helping people with severe disabilities become economically sound, Obermeyer said. As for Forma, who will graduate from school this year and will look for a job as a fundraiser for a nongovernmental organization, prospects are good. Caseworkers at Cerebral Palsy of Westchester Inc. are working on finding Forma an apartment for when he returns to Because he already has work experience in his selected field, there are several local organizations to which he will send his résumé. "I always tell him he's going to make a difference in this world," |
