There is a room, and in this spot there are no barriers, no walls, no curbs and no judgements. It is a place where people listen deeply and take time to hear what everyone has to say. There are friends of all abilities, loving, accepting and supporting one another. It is a room in which people can dream and share their goals. In this situation relationships begin and flourish. It is a spot where those of us who talk are silenced and the only sound that fills the air is the voices of those who use Augmentative and Alternative Communication (AAC).
This is not fiction, this place exists, and if you were lucky enough to be in this room without doubt, you will have been profoundly touched and inspired. The memories of this place will change your live in many ways.
The 3rd Biennial Independence, Community and Empowerment (ICE) Canada conference happened March 23-25, 2007 in Toronto, Ontario. It is clear by the ever-increasing number of conference participants that once you have been to ICE you will keep coming back. This year there were over 230 people in attendance from all across Canada. The relationships formed were one of the many highlights of this year’s conference. For this 3rd ICE conference, it now feels like going back to camp to rekindle old friendships and make new ones. The Art of Managing Change was the theme of the weekend. Speakers discussed the changes happening in their lives as well as challenges and successes.
At the 2nd ICE conference a 10 year old boy inspired the conference planning committee. This young star showed us how important this event is, not only for adults who use AAC, but for people of all ages to share their stories, make new friends, and see the hopes and dreams of the future. This young boy paved the way for so many and this time we were blessed with the presence of younger conference attendants to make us all smile. Their youthful insight was unmatched! Liam told us at the town hall meeting “I can’t believe so many ways to talk”, “I had a great time”. We were also fortunate to have the families of these young folks there to share with, and learn from.
The program deserves mention of several significant contributions. Marlowe Horn eloquently chaired the weekend. She was a visible presence and role model for many others. Thanks Marlowe!
The keynote speaker this year was the first Canadian to hold this honour. Anne Abbott, professional artist, spoke of her art and how it is a means of expression for her and has allowed her to “spread her wings”. In addition, Anne graced us with a demonstration of how she accomplishes her precious works of art.
Paul Marshall, chair of the town hall meeting characterised the experience with; “The knowledge that we have today cultivates the sunrises of our tomorrows. We have the power in this room to alter and improve the quality of existence for others.” Themes that emerged during the town hall meeting, during which only people who use AAC could participate, included transportation, poverty, employment, isolation, and independence. Everyone had their say!
Special guest Jim Prentice from the Pittsburgh Employment Conference (PECS) conference shared his story “With communication anything is possible”. Jim discussed with humour his life experiences and exclaims that “His device has given him freedom to be independent”. Jim also “firmly believes that language and the ability to use it well, are two of the great equalizers for a severely disabled person”.
There was a talk on “Moving from school into the workforce” by Aleksander Poposki that explained the challenges in gaining employment, but also that there are successes along the way! Alex now has his own business which he runs alongside his wife.
There was a panel discussion about independence. Nola Millin in her humorous way (she could be a comedian) told her story of living independently and her struggles and victories. I think she even quoted Donny Osmond in her presentation (her childhood idol). Nola is an inspiration and role model for all of us in her strength, kind heart and conviction of character! Al Sunisloe called his presentation “Independence, some experience and philosophy”. Living independently has allowed him to travel by himself to places like Niagara Falls, Calgary, and Florida. Having an independent mind is most important Al reminds us!
Another panel discussed transitions and self advocacy for young children. Robin Hurd, mother of four boys, has eight year old twins who have identical physical disabilities, and communicate using AAC. She shared her wise views of the character traits required for AAC users to become successful adults; independence, persistence, self-expression, and sense of humour. She discussed the incongruence of these traits and what is considered to be valued in a child’s world. Her ideas were thought provoking and so valued! Rebecca Beayai presented the story of her contribution to her community as artist, dancer, dreamer, teacher and friend with her video called “Revel in the Light”. Rebecca’s dream is to change the world into a more compassionate place where everyone’s gifts are recognized and welcomed. Susan, Rebecca’s mother, spends much of her time “walking” with families, as they help the world see the gifts of their sons and daughters. I urge you all to get a copy of Rebecca’s video by contacting her at beayni@sympatico.ca
The entertainment on the Saturday night was uplifting, fulfilling and FUN. The Thames Valley Train Wreck Band from London, Ontario performed to their best audience yet. This inclusive band allows opportunities for people with various abilities to learn and perform music live. The dance floor was crowded with movement and excitement as they played their contemporary rock songs. The band was “raising the roof” and participants were “cutting the rug”! Conference participants were invited to join the band on stage to perform with Train Wreck and the smiles on the new musicians faces were priceless! Music is another method of expression. Penny Kitchen from Halifax had mentioned at the Town Hall meeting that she “wants to make music” so she was one of the first to play with the band! The performance was just the beginning of the party!
The next ICE conference will occur again in 2 years … so mark your calendars now! For me the ICE conference is the single most gratifying event of my career working in AAC. Visit the website www.iceconference.ca for some highlights and photos. You might walk into this place for the first time as a stranger but you will leave changed, inspired and fulfilled. You will learn to let the world be your canvass if you spread your wings.
Here are some pictures!
